I saw my neurologist today and he told me I should stop wearing my helmet, that it just reinforces in my mind that I have a seizure disorder. So after I took it off and carried out of the clinic into the warm sunshine, I felt freed of what has become for me the symbol of my condition and my frustration and anger. This is a significant step in my improvement and cause for celebration.
He also said that I can't drive for the 6 months following my last seizure. I do not look forward to a summer without that luxury.
I have been seizure free since last Friday. I ended up with a total of 3 seizures last week, down from 6 the prior week.
My pain continues to stay in the 4-6 range. The worst pain is on the front of the balls of both feet, nearest my big toes. Near the end of the day when the pain is worst, I take off my shoes and elevate my feet.
Last Tuesday I saw Dr. Schakel, who has been treating my LV pain since last fall. With the pain management plan we developed over time, I can see my regular doctor each month for an assessment and get my narcotics prescriptions. I graduated from the Pain and Palliative Care Clinic, another cause for jubilation!
2 comments:
Hi, I too have LV....fighting it since the summer of 06.I was just diagnosed 6 months ago.I have recently found 2 others with LV online...while I am sorry they have it,it is nice to have someone that can relate.Thank you for sharing your information!
I hope you are having a good day( as good of a day you can have with LV)
So glad to hear the good news. I know how the spirit soars when there is hope. Hope is what keeps us going.
Missed a Birthday greeting for you since we were away most of this month. I am sure your Birthday had a extra special celebration included this year.
Praying the "good news" keeps coming.
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