My pain level since seeing Dr. Schakel last has been 3-4 and I can walk around, go shopping, and do my 1 hour daily walk. We are now achieving the goals of my pain management plan. Thank you Dr. Schakel. Also, I am still currently ulcer free. I do wake up with pain levels between 6-8, so I take my morning doses and wait a half hour before getting out of bed.
Lately my seizures have been less frequent, at 2-3 daily in number, and have been described to me as being much less violent and mostly it looks like I am peacefully resting. I am still confused and scared when I come to. The people around me that I am with are more relaxed and skilled in what to do and how to manage my seizure and also the onlookers. My youngest Lucy, has been extremely helpful, agreeing to go with me places knowing she will be the one who needs to manage all aspects of my seizure if they happen. She takes it all in stride. I love and appreciate her dearly every day.
Yesterday was the first seizure free day I have had since December 9. This is certainly cause for celebrating!!! I did some looking back in my notes and calculated I have had between 400 and 500 seizures in the previous 84 days. That's a lot. Along the way I have met others that have suffered through and/or eliminated their seizures. That helps me feel not as isolated.
My current med list is:
aspirin 325 mg daily
Cymbalta 60 mg daily
Danazol 200 mg daily
Persantine 75 mg three times daily
Lovenox 60 mg/.6 ml subcutaneous injection twice daily
Folic Acid 400 mcg daily
Neurontin 1200 mg three times daily
Remeron 30 mg daily
Nifedipine SR 30 mg daily
Pentoxifylline 400 mg three times daily
Zantac 150 mg twice daily
Trazadone 150 mg daily
Vitamin B-12 1000 mcg daily
Vitaminb B-6 100 mg daily
MS Contin 30 mg three time daily
Oxycodone 5-10 mg as needed
Well butrin SR 50 mg three times daily
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