I talked to the Walgreen's Option Care infusion center today about my IVIg therapy. They have received the order from Dr. Leitch and are working to get it approved through my insurance. My treatment will be a 5 hour drip of IV Immunoglobulin for 2 consecutive days per month. I will do this for 4 months for a total of 8 treatments. This is the extent of the treatment and I hope to be completely ulcer and pain free after the conclusion of the treatments. That would be a dream come true for me and hopefully many others.
I had a thought the other day: what if the pain I experience now and between other ulcer outbreaks is not related to LV but something else? I asked the other 3 women with LV that I trade email with and none of them have been ulcer free since their ulcers started. So for that I am blessed. But I do not have anything else to compare to. I will ask Dr. Leitch when I see her next.
2 comments:
I hope the pain is related to the LV, that way hopefully the IV treatment will work and you will be PAINFREE!
I am sure you are like the rest of us in that we have forgotten what it feels like to live painfree.I really cannot remember but I am sure it is glorious!
Take care.
Hi Im Carol and was dignosed with LV 2007. It took 3 years to find out what it was- I am 46 and im trying to figure out how to deal with this disease- I am in pain all the time- they have put a pain stimulator in my back- with little results- i cant stand for long periods on my feet without pain- i take pain meds to help with the pain- im hoping to find treatment options
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