Stop back from time to time...

Wednesday, March 29, 2006

text from an email I sent to family and close friends

I sent this email mid February of this year when I was in a lot of pain.

"I have been diagnosed with a medical condition called Livedoid Vasculopathy. It is a chronic vascular disorder that I have been living with for about 5 years now. The symptoms that most affect me are painful recurring ulcers mostly in my ankles and a seemingly related painful neuropathy of the skin of my feet and ankles that feels like a very bad sunburn without the hot feeling, just the stinging. The symptoms come and go to a certain extent, but lately the symptoms (especially the pain) have been worse than they ever have been. It makes it hard to wear shoes or stand at times. As far as I have been informed, this condition is uncommon, permanent, not communicable but progressive. There is no known cause or cure at this point.

"As someone raised in MN by a Norwegian father, it is not in my nature to broadcast my personal life or problems. I decided that this year, it might be beneficial to share this information to the people close to me. Not to illicit pity or concern, but just to share a piece of my life that I consider very private and to explain some of my behavior.

"I am continuing with my own education about this condition and its varied treatments."

No comments: