IVIg status

I talked to the Walgreen's Option Care infusion center today about my IVIg therapy. They have received the order from Dr. Leitch and are working to get it approved through my insurance. My treatment will be a 5 hour drip of IV Immunoglobulin for 2 consecutive days per month. I will do this for 4 months for a total of 8 treatments. This is the extent of the treatment and I hope to be completely ulcer and pain free after the conclusion of the treatments. That would be a dream come true for me and hopefully many others.

I had a thought the other day: what if the pain I experience now and between other ulcer outbreaks is not related to LV but something else? I asked the other 3 women with LV that I trade email with and none of them have been ulcer free since their ulcers started. So for that I am blessed. But I do not have anything else to compare to. I will ask Dr. Leitch when I see her next.

status 4-22-10

My pain level continues as it has for weeks and months now. I am surprised that there has been no reprieve since February. I am still active but watch how much I do on my feet. When I do a lot during the day, I suffer more in the evening and at night.

Dr. Leitch is checking into IVIg therapy as a possible treatment.

still painful

I looked at my last post and I can say the same about my pain now, 8 when I wake and 4-7 through the day. I have no ulcers. I am back to work today and still seizure-free.

Through the web and email, I have now been in contact with 3 women who also have been diagnosed with LV. We are sharing stories and treatments in the hopes that something will work.